What are we learning from the updated People Living with HIV Stigma Index 2.0?

16 August 2018

The People Living with HIV Stigma Index is a standardized survey that was developed by the Global Network of People Living with HIV (GNP+), the International Community of Women Living with HIV (ICW), the International Planned Parenthood Federation, and UNAIDS to better understand stigma and provide evidence that can be used to advocate for the rights of people living with HIV.


The Stigma Index was launched in 2008 and as of October 2017, it had been translated into 54 languages, 100,000 people living with HIV from 90 countries had been interviewed, and 2,000 people living with HIV had been trained as interviewers. The Stigma Index is both a data collection tool and an empowering intervention for both the interviewers (who are living with HIV) and the interviewees who are sharing their experiences of stigma.


In recent years, feedback from interviewers and interviewees indicated that the Stigma Index needed to be updated to better reflect changes in the epidemic and the HIV response.


Project SOAR—in conjunction with GNP+, ICW, UNAIDS, and other local and global partners—worked together to refine the Stigma Index and to pilot the revised version (Stigma Index 2.0) in Cameroon, Senegal, and Uganda.


With its expanded scope and agility, the Stigma Index 2.0 creates opportunities for countries and communities to implement a tool that yields evidence for informing stigma reduction interventions, monitoring progress over time, and advocating for the rights of people living with HIV.


Learn about the topical and methodological changes in the Stigma Index 2.0.

Learn about the findings from the pilot studies.

Learn about how the Stigma Index 2.0 measures intersecting stigma among key populations living with HIV.

For questions about the questionnaire and implementation contact GNP+
The Stigma Index User Guide can be accessed at the Stigma Index website.