Updating the People Living with HIV Stigma Index
The People Living with HIV Stigma Index was developed by the Global Network of People Living with HIV (GNP+), the International Community of Women Living with HIV (ICW), the International Planned Parenthood Federation (IPPF), and UNAIDS to provide evidence on stigma and discrimination that can be used to advocate for the rights of people living with HIV. In keeping with the GIPA principle (greater involvement of people living with HIV/AIDS), the Stigma Index is both a data collection tool and an empowering intervention for both the interviewers collecting data and the interviewees who are sharing their experiences of stigma.
In October 2015, supported by USAID/PEPFAR, Project SOAR established a small working group with representatives from GNP+, ICW, UNAIDS, USAID, and several experts within and external to SOAR to update the Stigma Index. This brief describes the transparent process the small working group followed for evaluating and updating the Stigma Index, incorporating as many perspectives as possible in the process.